Balloons and Butterflies – A Tribute to Delainey Belle

2015-10-16

It was October 16, 2012. I will never forget that day. I was at work and was rushing to wrap things up because I was leaving early to attend the Association of Personal Historian conference in St. Louis that week. Unexpectedly, I received the phone call from my nephew that afternoon that I will never forget.

My twenty-three month old grandniece had left us. Christy and Tim’s daughter, Delainey Belle, was born on November 15, 2010 with Trisomy 18.  This chromosomal condition was diagnosed before her birth. They were told that it is a fatal condition with most of the babies dying before birth and those who do make it to birth typically live only a few days. And less than ten percent of babies with Trisomy 18 live at least one year.

Delainey Belle had been defying the odds given her. As time passed and her extensive care had all been put in place, her mom eventually returned to work. But fortunately on this day her mom was scheduled off. She loved Delainey Belle to the moon and back and was with her from her first breath to her last.

That day I went on to the conference and while hearing the importance of preserving priceless life stories, I was inspired to create a memorial book for Delainey’s short life. At dinner that night I shared with fellow personal historians about this precious child and was given suggestions on how to create it. I left the conference early to attend the wake and funeral.

The tributes started pouring in from family and friends. It was amazing to read the tributes of how Delainey Belle touched so many lives. The most common words used in everyone’s writings were: love, thankful, blessing, smiles, hope, and inspiration. We easily found pictures of everyone holding Delainey and smiling at her and was able to match them with their tribute. The love was shown in those pictures with the eye contact Delainey shared with all who met her.

Christy wrote this poem and read it at the funeral:

Delainey Speaks

Even though you think you shouldn’t,

Laugh anyway, it makes me smile.

Even though you can’t carry a tune,

Sing anyway, it calms me.

Even though you think you can’t,

Try anyway, I always did.

Even though people say you won’t,

Do anyway, I proved them wrong.

Even though you may have obstacles,

Overcome them, I was able.

Even though you have tears,

Shed them anyway, I had to.

Even though you think you can’t,

Live anyway, I did.

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